On average, a patient must take about 50 pills a day, morning and evening inhalations, intravenous antibiotics, steroids, and more. The association assists in purchasing medicines, fortified food, medical equipment, exercise equipment, and student aid. In addition, the union is fighting for the introduction of new drugs in the health basket.
The Cystic Fibrosis Association regularly holds support groups and workshops for patients to formulate between the patients for the benefit of mutual assistance and the provision of tools for dealing with the disease.
The Cystic Fibrosis Association works to increase public awareness through the media Informing students in schools, running a website, running social networks, publishing the newspaper “Breathe Free,” organizing conferences and seminars for patients and their families and professionals.
The Cystic Fibrosis Association initiates activities to ensure rights and excellence in public institutions and organizations such as health funds, the Ministry of Health, the National Insurance Institute, the Ministry of Welfare, the Ministry of Education, and the Interior. For example: Adding new drugs to the health basket. Applying to the HMOs for exceptional approvals …
The Cystic Fibrosis Israel organization fights for introducing new drugs in the health basket and provides support and assistance in financing treatments that are not covered by the health basket Recently, a new drug called “Tripacta” was approved after the union’s long struggle and efforts, which significantly improved patients’ lifestyles
